Provide Palliative Care - Home Care
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Provide Palliative Care

The Principles of Palliative Care

Palliative care is integrated into a client’s overall care, as well as the care their family receives. The following are modified from the ‘Principles for Palliative and End of Life Care in Residential Aged Care’5:

1. Consumers' physical and mental needs at the end of life are assessed and recognised
2. Consumers, families and carers are involved in end of life planning and decision-making
3. Consumers receive equitable and timely access to appropriate end of life care within aged care facilities

Provide Palliative Care - ELDAC Care Model

4. End of life care is holistic, integrated and delivered by appropriately trained and skilled staff 5. The end of life care needs of consumers with dementia or cognitive impairment are understood and met within residential aged care
6. Consumers, families and carers are treated with dignity and respect
7. Consumers have their spiritual, cultural and psychosocial needs respected and fulfilled
8. Families, carers, staff and residents are supported in bereavement5

Following the Palliative Care Needs Assessment

After assessing a client’s palliative care needs:

  • check history of symptoms and previous treatments received and their effect.
  • determine the effect of the problem on the client’s normal activities and daily function.
  • consider treatment options.6

Next Actions:

  • agree and implement a care plan with the client (and their family) and the multidisciplinary team.
  • establish whether these symptoms can be managed by the current treating team.
  • if severe problems are identified or anticipated, consider referral to the specialist palliative care service or specialists within your service (e.g. Nurse Practitioner).5

The client’s care plan should be updated to reflect their palliative care needs. The four domains identified in the Assess Palliative Care Needs section of the toolkit are also used in this section to highlight how to meet the palliative care needs of the client and their family.

This section has a range of links that provide a range of information on common symptoms:

Difficulty Sleeping

Fatigue

  • CareSearch Clinical Evidence has information on fatigue.
  • The Palliative Care Bridge has a video on managing fatigue.

Appetite Problems

Oral Care

  • palliAGED has downloadable Practice Tips on Oral Care for Nurses (pdf 236kb) and Careworkers. (pdf 441kb)

Nausea

Bowel Problems

Dyspnoea (Breathing Problems)

Skin and Wound Care

  • palliAGED has downloadable Practice Tips on Skin and Wound Care for Nurses (pdf 263kb) and Careworkers. (pdf 371kb)

Pain

  • CareSearch Clinical Evidence has information on pain.
  • palliAGED has information on prescribing to manage pain and downloadable Practice Tip sheets pain management for Nurses (pdf 262kb) and Careworkers. (pdf 355kb)
  • Leading Aged Care Services (LASA) has a short video and accompanying factsheet on pain management.

Delirium

Dementia Care

Anxiety

  • CareSearch Clinical Evidence has information on anxiety.
  • palliAGED has prescribing information for anxiety and downloadable Practice Tip sheets on anxiety for Nurses (pdf 353kb) and Careworkers. (pdf 424kb)

Depression

  • CareSearch Clinical Evidence has information on depression.

The Palliative Care Needs Assessment Guidance has a summary poster (184kb pdf) on all four domains and considers the whole family as the unit of care. There are suggestions on the approach to take; identification of symptoms and concerns with example prompts for the assessor; and suggested actions to take.

When assessing a person with life-limiting illness it is important to understand their concerns in relation to home, family and community; and to identify risk in relation to their independence and social functioning.

palliAGED has downloadable Practice Tips on Talking about Dying for Nurses (pdf 315kb) and Careworkers; (pdf 454kb) Continuity of Care for Nurses (pdf 268kb) and Careworkers; (pdf 437kb) and Case Conferences for Nurses (pdf 340kb) and Careworkers. (pdf 431kb)

The Palliative Care Needs Assessment Guidance has a summary poster (184kb pdf) on all four domains including suggestions on identifying psychological and emotion issues residents may have. People with life limiting conditions frequently have psychological concerns. In order to identify these concerns, it is essential that the assessor is proactive in asking about emotional and psychological issues. Concerns may include:

  • Mood and interest
  • Adjustment to illness
  • Resources and strengths
  • Uncontrolled multidimensional
  • Pain (total pain)
  • Pre-existing mental illness
CareSearch has webpages with additional resources on anxiety and depression. (Domain 1 – Physical Wellbeing (above) has information on Anxiety and Depression.)

Knowing and understanding the resident’s cultural beliefs will help careworkers be more sensitive to the resident’s and family’s needs and traditions. Careworkers will be better able to show respect, which helps provide good end-of-life care.

palliAGED has downloadable Practice Tips on Spiritual Care for Nurses (pdf 270kb) and Careworkers. (pdf 340kb)

Palliative Care Bridge has a video - the place of spiritual care at the end of life.

Leading Aged Care Services (LASA) has a short video and accompanying factsheet called ‘Authentic Diversity’ in residential aged care and home care settings. This resource is about providing a supportive environment which honours the unique preferences, culture, needs and beliefs of the individual client, their families, carers and/or significant others.

  • Family Resources

The Guidelines for a Palliative Approach for Aged Care in the Community Setting (COMPAC) created a resource called 'How a palliative approach can help older people being cared for at home' (140kb pdf). This booklet was developed for older people and their families.

Palliative Care Australia (PCA)

Palliative Care Australia has a comprehensive website devoted to palliative care resources. Some of these include:

  • general brochures for families explaining palliative care and there are multilingual care brochures available in 17 community languages.  Further resources in downloadable and printable format are also available.

The PCA website has a section called ‘Understanding Palliative Care’ that includes information on:

The PCA website has a ‘Support and Services’ section that offers information on:

Department of Health

The Department of Health has a website devoted to Palliative Care and End of Life Care. There is a short video called “Talking about Palliative Care” featuring people from diverse cultures chatting about end of life care.

CareSearch

CareSearch has also a webpage about clients wanting to talk with someone – in terms of finding the right person, professional help or support group.  There is a webpage on communication at the end of life that has resources to assist in communicating with families, especially at such as emotional time.

The Living with Illness section on CareSearch was designed for clients and their families to help with the various concerns that may arise when coming to terms with a life limiting illness. Topics covered include:

The How to Care section on CareSearch provides a range of helpful information for caregivers in carrying out their role and also to tips on taking care of themselves as well. These links provide a range of information including:

PalliAGED

The PalliAGED website has collated a comprehensive list of resources for the family on palliative care and end of life needs including topics on:

  • About palliative care
  • Advance care planning
  • At the very end of life
  • Bereavement, grief and loss
  • Carers
  • Complementary therapies
  • Discussing palliative care
  • Funerals
  • Medicines
  • Pain
  • Residential aged care
  • Symptoms other than pain

Page updated 29 May 2019