• Primary Care
  • Clinical Action
    • Advance Care Planning
    • Recognise End of Life
    • Assess Palliative Care Needs
    • Provide Palliative Care
      • Managing Symptoms
      • Serious Complications and Emergencies
      • Medication Management
      • Procedures and Investigations
      • Syringe Drivers
      • Patient Information
      • Education and Training Resources
      • Research
    • Work Together
    • Respond to Deterioration
    • Manage Dying
    • Bereavement
    • Palliative Care in Diverse Populations
    • References
  • Team Action
    • Quality Improvement
    • Collaboration and Partnering
    • Practice Management
    • My Health Record
    • Greater Choice for At Home for Palliative Care
  • HealthPathways
    • Primary Health Network (PHN) Map Locator
    • Find my HealthPathways
    • HealthPathways in Palliative Care and Advance Care Planning
      • NSW
        • Sydney
        • South Eastern Sydney
        • Central Coast
        • Hunter New England Community
        • Nepean Blue Mountains
        • Mid and North Coast
        • Sydney North
        • Illawarra
        • ACT/Southern NSW
        • Western Sydney
        • Murrumbidgee
        • South Western Sydney
      • ACT
      • VIC
        • Melbourne
        • Gippsland
        • Murray
        • Western Victoria
      • QLD
        • Brisbane North
        • Brisbane South
        • Gold Coast
        • Sunshine Coast
        • Central Queensland
        • Wide Bay
        • Darling Downs
        • West Moreton
        • Western Queensland
        • Far North Queensland
        • Townsville
        • Northern Queensland
      • SA
      • NT
      • WA
      • TAS
    • HealthPathways Engagement and Development
    • HealthPathways Resources
• Home Care
  • Clinical Care
    • Advance Care Planning
    • Recognise End of Life
    • Assess Palliative Care Needs
    • Provide Palliative Care
    • Work Together
    • Respond to Deterioration
    • Manage Dying
    • Bereavement
    • References
  • Education and Learning
    • Personal Learning Assessment
    • Online Training
    • Educator Resources
    • Other Ways to Gain Experience
    • Resources
      • Advance Care Planning
      • Palliative Care
      • Self-Care
      • Bereavement
    • Useful Links
  • Organisational Support
    • Support Systems
    • Quality Improvement
    • Standards and Funding
    • Work Together
    • Diverse Populations
      • Supporting Inclusive End of Life Care Companion Guides
      • Diverse Populations End of Life Needs Assessment
• Residential Aged Care
  • Clinical Care
    • Advance Care Planning
    • Recognise End of Life
    • Assess Palliative Care Needs
    • Provide Palliative Care
    • Work Together
    • Respond to Deterioration
    • Manage Dying
    • Bereavement
    • References
  • Education and Learning
    • Personal Learning Assessment
    • Online Training
    • Educator Resources
    • Other Ways to Gain Experience
    • Resources
      • Advance Care Planning
      • Palliative Care
      • Self-Care
      • Bereavement
    • Useful Links
  • Organisational Support
    • Support Systems
    • Quality Improvement
    • Standards and Funding
    • Work Together
    • Diverse Populations
      • Supporting Inclusive End of Life Care Companion Guides
      • Diverse Populations End of Life Needs Assessment
• End of Life Law
  • Overview of End of Life Law in Australia
  • Capacity and Consent to Medical Treatment
    • Overview
    • Factsheets
    • Mythbusters
    • Case Study
  • Advance Care Directives
    • Factsheet
    • Mythbusters
    • Case Study
    • Resources
  • Substitute Decision-Making
    • Factsheet
    • Mythbusters
    • Case Study
  • Withholding and Withdrawing Life-Sustaining Medical Treatment
    • Factsheet
    • Mythbusters
    • Case Study
  • Legal Protection for Administering Pain and Symptom Relief
    • Factsheet
    • Mythbusters
    • Case Study
    • Resources
  • Futile or Non-Beneficial Treatment
    • Factsheet
    • Mythbusters
    • Case Study
  • Emergency Medical Treatment
    • Factsheet
    • Mythbusters
    • Case Study
    • Resources
  • Managing Disputes about Medical Treatment Decision-Making
    • Factsheet
    • Mythbusters
    • Case Study
    • Resources
  • Voluntary Assisted Dying
    • Overview
    • Factsheets
    • FAQs
    • Resources
• Linkages
  • Why a Toolkit on Linkages
  • Plan – Identifying and Preparing
  • Do – Implementing
  • Check – Assessing and Revising
  • Act – Sustaining
  • References
• Dementia
  • Clinical Care
    • Advance Care Planning
    • Recognise End of Life
    • Assess Palliative Care Needs
    • Provide Palliative Care
    • Work Together
    • Respond to Deterioration
    • Manage Dying
    • Bereavement
    • References
  • Education and Learning
    • Your Learning Needs
    • Online Training
    • Other Ways to Gain Experience
    • Resources
      • Advance Care Planning
      • Palliative Care
    • Useful Links
• Allied Health
  • Why an Allied Health Toolkit
    • End of Life Care in Aged Care
    • Toolkit Overview and Design
    • Personal Knowledge Map Experienced Clinicians
    • Personal Knowledge Map - New to Palliative Care
    • Acknowledgments
  • Allied Health Team
    • Allied Health Regulatory Bodies
    • Allied Health Role in Palliative Care
    • Dietitian
    • Occupational Therapist
    • Pharmacist
    • Physiotherapist
    • Psychologist
    • Social Worker
    • Speech Pathologist
    • General Tools and Resources
  • Practising in Aged Care
    • End-of-life Communication
    • Person-Centred Care
    • Self-Care
    • Telehealth
    • Referral Pathways
    • Funding and Rebates
    • Supporting older adults with disability funding
  • Guidance and Research
    • Discipline specific evidence
    • Useful Websites
• Managing Risk
  • What is the Managing Risk Toolkit
  • Nutrition and Hydration
    • Overview
    • Personal Preferences
    • Ongoing Assessment
    • Support the Person
    • The Last Days of Life
    • Good Communication
  • Medication Management
    • Overview
    • Personal Preferences
    • Medication Needs, Goals and Preferences
    • Changes in Symptoms
    • Pain Free as Possible
    • Good Communication
  • Transfers
    • Overview
    • Personal Preferences
    • Unintended and Unnecessary Transfers
    • Planning, Risk Assessment and Communication
    • Continuity of Care Between Settings
  • References
• Toolkit Educational Videos

1. Dementia Australia. About Dementia [Internet]. 2022 [cited 18 November 2022]
2. Australian Institute of Health and Welfare (AIHW). Dementia in Australia Web Report Population Health Impacts of Dementia [Internet]. Canberra: AIHW, last updated 16 September 2022 [cited 18 November 2022].
3. van der Steen JT, Radbruch L, Hertogh CMPM, de Boer ME, Hughes JC, Larkin P, Francke AL, Jünger S, Gove D, Firth P, Koopmans RTCM, Volicer L on behalf of the European Association for Palliative Care (EAPC). White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine [Internet]. 2014 [cited 18 November 2022]; 28(3):197-209. DOI:/10.1177/0269216313493685.
4. Dementia Australia. Types of Dementia [Internet]. 2022 [cited 18 November 2022].
5. Australian Government Department of Health and Ageing. A National Framework for Advance Care Directives 2011 [Internet]. Canberra: Australian Government Department of Health and Ageing, 2011. [cited 18 November 2022]. Publications Number: P3-4802.
6. Australian Commission on Safety and Quality in Health Care (ACSQHC). National Consensus Statement: Essential elements for safe and high-quality end-of-life care. 2015, P33 [Internet]. Sydney: ACSQHC, 2015. [cited 18 November 2022].
7. Parker D, Lewis J, Gourlay K. Palliative Care and Dementia. 2018 [Internet]. Canberra: Dementia Australia, 2018. [cited 18 November 2022]. Paper Number 43.
8. Gold Standard Framework (GSF) Centre. GSF Proactive Identification Guidance (PIG). [Internet] 2022 [cited 18 November 2022].
9. Social Care Institute for Excellence (SCIE). Dementia: Eating and Drinking at the End of life [Internet]. 2020 [cited 18 November 2022].
10. Aged Care Research and Industry Innovation Australia (ARIIA). Responsive Behaviours [Internet] 2022 [cited 18 November 2022].
11. CareSearch. What is Person-Centred Care [Internet] 2015 [cited 18 November 2022].
12. Collaboration between Palliative Care Australia, Alzheimer’s Australia, COTA Australia, Aged & Community Services Australia, Leading Age Services Australia, Catholic Health Australia and the Aged Care Guild. Principles for Palliative and End-of-Life Care in Residential Aged Care 2017 [Internet] PCA, 2017 [cited 18 November 2022].
13. Dementia Australia. Progression of Dementia [Internet] 2022. [cited 18 November 2022].
14. Palliative Care Australia. The National Palliative Care Standards [Internet]. Sydney: PCA, 2018, 5th edition, Page 36. [cited 18 November 2022].
15. Royal Australian College of General Practitioners (RACGP). RACGP Aged Care Clinical Guide (Silver Book): Part A. Dementia [Internet]. 2019 RACGP, 5th edition. [cited 18 November 2022].
16. Australian Institute of Health and Welfare (AIHW). Dementia in Australia Web Report: Community-based Aged Care [Internet]. Canberra: AIHW, last updated 21 September 2023 [cited 18 November 2022].
17. Australian Institute of Health and Welfare (AIHW). Dementia in Australia Web Report: Residential Aged Care [Internet]. Canberra: AIHW, last updated 21 September 2023 [cited 18 November 2022].
18. Australian Institute of Health and Welfare (AIHW). Dementia in Australia Web Report: How do Care Needs of People with Dementia Differ by Place of Residence? [Internet]. Canberra: AIHW, last updated 16 September 2022 [cited 18 November 2022].
19. Royal Australian College of General Practitioners (RACGP). RACGP Aged Care Clinical Guide (Silver Book): Part A. Palliative and End-of-Life Care [Internet]. 2019 RACGP, 5th edition. [cited 18 November 2022].
20. Murray SA, Kendall M, Boyd K, Sheikh A. Illness Trajectories and Palliative Care. British Medical Journal [Internet] 2005 [cited 18 November 2022]. 330(7498):1007–1011. DOI: 10.1136/bmj.330.7498.1007.
21. Eisenman Y, Golla H, Schmidt H, Voltz R, Perrar KM Palliative Care in Advanced Dementia. Frontiers in Psychiatry [Internet] 2020 [cited 18 November 2022] 11: Article 699. DOI: 10.3389/fpsyt.2020.00699.
22. Social Care Institute for Excellence (SCIE). Dementia: Care in the Last Days of Life with Dementia [Internet]. 2020 [cited 18 November 2022].
23. CareSearch. Bereavement and Grief [Internet]. 2021 [cited 18 November 2022].
24. Toye C, Lester L, Popescu A, McInerney F, Andrews S, Robinson, AL. Dementia Knowledge Assessment Tool Version Two: Development of a tool to inform preparation for care planning and delivery in families and care staff. Dementia [Internet]. 2014 [cited 21 October 2022]; 13(2): 248-56. DOI: 10.1177/1471301212471960
25. No authors listed. Corrigendum. Dementia [Internet].2016 [cited 21 October 2022]; 15(5):1313.DOI: 10.1177/1471301216665269

Page last updated 08 December 2023