ELDAC - Information and Services - Manage Dying

Manage Dying

Care for a person as they die

  •  Carer Information: contains resources you can give to carers and families to help them care for someone with a life-limiting illness.
  •  How to Guide: walks you through the steps to deliver best-practice care, including online training for health professionals.
  •  Forms and Templates: provides standardised paperwork, checklists and templates to care for people living with a life-limiting illness.
Manage Dying - ELDAC Care Model
  • Patient/Carer Information
  • How to Guide

Patients and Carers
CareSearch has specific resources for patients with palliative care needs and for their carers

CarerHelp website
CarerHelp is funded by the Australian Government Department of Health. It aims to empower family carers who provide care to someone with a terminal illness.
Clinical Excellence Commission, NSW Government

Family/Carer Information Regarding Medications in the Last Days of Life
Provides carer information about medicines that are given to a person to increase comfort and relieve symptoms in their last days of life

http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0003/359337/LDOL-Toolkit-FAMILY-CARER-INFORMATION-RE-MEDICATIONS-Final-April-2016.PDF (183kb pdf)


Asking Questions Can Help - For Friends or Carers of People Approaching the Last Days of Life
Guides friends or carers of people approaching the last days of life with questions to ask

http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0010/359290/1.-English-Asking-Questions-can-help-for-familyfriends.PDF (177kb pdf)


Asking Questions Can Help - For People Approaching the Last Days of Life
Guidance for questions to ask a person approaching the last days of life

http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0010/359335/LDOL-Toolkit-Asking-Questions-can-help-for-the-patient-approaching-last-days-of-life-Final-April-2016.PDF (175kb pdf)


What to Consider When Your Family Member or Friend Has Expressed a Wish to go Home from Hospital to Die at Home
Guidance to help you decide whether a carer may be able to take a family member or friend home from hospital for the last days or weeks of life to die at home

http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0011/359309/3.-English-A-WISH-TO-GO-HOME.PDF (174kb pdf)


When a Person Dies in Hospital
What to do for an expected hospital death

http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0011/359336/LDOL-Toolkit-What-to-expect-when-a-person-dies-in-hospital-Final-April-2016.PDF (172kb pdf)

Palliative Care Australia

The Dying Process
Information and support to help carers to understand, anticipate and respond to some of the signs they may notice when their loved one is imminently dying

https://palliativecare.org.au/wp-content/uploads/2015/05/PCA002_The-Dying-Process_FA.pdf (725kb pdf)

Better Health Channel

What to do after someone dies
Describes what to do for an expected home death



Planning for a Home Death
Guidance for GPs in preparing someone for a home death



Assessing the Dying Patient
Guidance for GPs in assessing the dying patient


Clinical Excellence Commission, NSW Government

Family/Carer Information Regarding Care in the Last Days of Life
Provides written information to family/carers as their loved one approaches the last days of life

http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0010/359299/2.-English-FAMILY-CARER-INFORMATION.PDF (173kb pdf)

End-of-Life Essentials

Recognising the End of Life
Learn about the use of tools and triggers to recognise the end of life



End of Life
Guidance for managing the end of life for people with Motor Neurone Disease (MND)



Initiating End of Life Discussions
Guidance for initiating discussions about end of life care for people with MND



Medications at End of Life
Guidance for prescribing at end of life for people with MND



MND Symptom Management at End of Life
Guidance for managing symptoms at end of life for people with MND


PalliAGEDgp Smartphone App

Prescribing Guidance
Support for GPs throughout Australia to anticipate which medicines to prescribe in the terminal phase


SA Health

Medication Cessation at End of Life
A guide to ceasing medicines abruptly when a person loses the ability to swallow

https://www.sahealth.sa.gov.au/wps/wcm/connect/5fc189804a24008cb979f990d529bdaa/Medication+Cessation+at+end-of-life_20160704.pdf?MOD=AJPERES&CACHEID=ROOTWORKSPACE-5fc189804a24008cb979f990d529bdaa-m08j3O6 (135kb pdf)


Prescribing Guidelines for the Pharmacological Management of Symptoms for Adults in the Last Days of Life
A guide for healthcare professionals in anticipatory prescribing in the last days of life

https://www.sahealth.sa.gov.au/wps/wcm/connect/f532fc004a0f0746a22fe290d529bdaa/Prescribing+guideline_Symptoms+at+end-of-life_20160704.pdf?MOD=AJPERES&CACHEID=ROOTWORKSPACE-f532fc004a0f0746a22fe290d529bdaa-m08mqeE (82kb pdf)

Page updated 11 May 2020