Patients and Carers CareSearch has specific resources for patients with palliative care needs and for their carers
Family/Carer Information Regarding Medications in the Last Days of Life Provides carer information about medicines that are given to a person to increase comfort and relieve symptoms in their last days of life
http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0003/359337/LDOL-Toolkit-FAMILY-CARER-INFORMATION-RE-MEDICATIONS-Final-April-2016.PDF (183kb pdf)
Asking Questions Can Help - For Friends or Carers of People Approaching the Last Days of Life Guides friends or carers of people approaching the last days of life with questions to ask
http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0010/359290/1.-English-Asking-Questions-can-help-for-familyfriends.PDF (177kb pdf)
Asking Questions Can Help - For People Approaching the Last Days of Life Guidance for questions to ask a person approaching the last days of life
http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0010/359335/LDOL-Toolkit-Asking-Questions-can-help-for-the-patient-approaching-last-days-of-life-Final-April-2016.PDF (175kb pdf)
What to Consider When Your Family Member or Friend Has Expressed a Wish to go Home from Hospital to Die at Home Guidance to help you decide whether a carer may be able to take a family member or friend home from hospital for the last days or weeks of life to die at home
http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0011/359309/3.-English-A-WISH-TO-GO-HOME.PDF (174kb pdf)
When a Person Dies in Hospital What to do for an expected hospital death
http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0011/359336/LDOL-Toolkit-What-to-expect-when-a-person-dies-in-hospital-Final-April-2016.PDF (172kb pdf)
The Dying Process Information and support to help carers to understand, anticipate and respond to some of the signs they may notice when their loved one is imminently dying
https://palliativecare.org.au/wp-content/uploads/2015/05/PCA002_The-Dying-Process_FA.pdf (725kb pdf)
What to do after someone dies Describes what to do for an expected home death
https://www.betterhealth.vic.gov.au/health/servicesandsupport/what-to-do-after-someone-dies?viewAsPdf=true
Planning for a Home Death Guidance for GPs in preparing someone for a home death
https://www.caresearch.com.au/caresearch/tabid/284/Default.aspx
Assessing the Dying Patient Guidance for GPs in assessing the dying patient
https://www.caresearch.com.au/caresearch/tabid/3430/Default.aspx
Family/Carer Information Regarding Care in the Last Days of Life Provides written information to family/carers as their loved one approaches the last days of life
http://www.cec.health.nsw.gov.au/__data/assets/pdf_file/0010/359299/2.-English-FAMILY-CARER-INFORMATION.PDF (173kb pdf)
Recognising the End of Life Learn about the use of tools and triggers to recognise the end of life
https://www.caresearch.com.au/caresearch/tabid/3999/Default.aspx
End of Life Guidance for managing the end of life for people with Motor Neurone Disease (MND)
http://www.mndcare.net.au/End-of-life.aspx
Initiating End of Life Discussions Guidance for initiating discussions about end of life care for people with MND
http://www.mndcare.net.au/End-of-life/Initiating-end-of-life-discussions.aspx
Medications at End of Life Guidance for prescribing at end of life for people with MND
http://www.mndcare.net.au/End-of-life/Medications-at-end-of-life.aspx
MND Symptom Management at End of Life Guidance for managing symptoms at end of life for people with MND
http://www.mndcare.net.au/End-of-life/Symptom-management-at-end-of-life.aspx
Prescribing Guidance Support for GPs throughout Australia to anticipate which medicines to prescribe in the terminal phase
http://apps.caresearch.com.au/palliAGED/Prescribing-guidance
Medication Cessation at End of Life A guide to ceasing medicines abruptly when a person loses the ability to swallow
https://www.sahealth.sa.gov.au/wps/wcm/connect/5fc189804a24008cb979f990d529bdaa/Medication+Cessation+at+end-of-life_20160704.pdf?MOD=AJPERES&CACHEID=ROOTWORKSPACE-5fc189804a24008cb979f990d529bdaa-m08j3O6 (135kb pdf)
Prescribing Guidelines for the Pharmacological Management of Symptoms for Adults in the Last Days of Life A guide for healthcare professionals in anticipatory prescribing in the last days of life
https://www.sahealth.sa.gov.au/wps/wcm/connect/f532fc004a0f0746a22fe290d529bdaa/Prescribing+guideline_Symptoms+at+end-of-life_20160704.pdf?MOD=AJPERES&CACHEID=ROOTWORKSPACE-f532fc004a0f0746a22fe290d529bdaa-m08mqeE (82kb pdf)
Page updated 11 May 2020