Clinical Care

This section of the ELDAC Dementia Toolkit delivers information on how to provide palliative care and advance care planning for people living with dementia and for their families and carers.

The Clinical Care section aligns with the eight elements of the ELDAC Care Model, which covers the following topics:

As this toolkit is not care setting specific, it should be used in conjunction with the 2 ELDAC toolkits – Residential Aged Care and Home Care.

The information provided in the ELDAC Dementia Toolkit is aligned with the Strengthened  Aged Care Quality Standards. Throughout the ELDAC Dementia Toolkit Clinical Care section, the following palliative terms are used. These definitions are from the Strengthened Aged Care Quality Standards. [1]

End of life refers to the period when an older person is living with, and impaired by, a fatal condition, even if the trajectory is unclear or unknown. This period may be years in the case of older people with chronic or malignant disease. Or be very brief in the case of older people who suffer acute and unexpected illnesses or events, such as sepsis, stroke or trauma. [1]

Dementia overview

Dementia is a term used to describe a collection of symptoms that are caused by disorders affecting the brain. Dementia affects people’s memory, thinking, mood, behaviour, and the ability to perform everyday tasks. [2]

Dementia is a significant health and aged care issue. In 2024, it was estimated that there were 425,000 Australians living with dementia. [3] Dementia is as a life-limiting condition and currently there is no cure. [3] Death with or from dementia noticeably increases with age. In 2023, dementia was the leading cause of death in Australia. [3]

Therefore, it is essential to recognise the end-of-life needs for people living dementia. It is important to note that palliative care may be required for people living with early or moderate dementia, particularly if they have other clinical conditions that are life-limiting.

Page updated 23 September 2026